Our daughter, Amelia, was born 4 weeks ago and, aside from the lack of sleep coupled with the fact that caffeine upsets her stomach, things have been going pretty well. That is, however, until I came down with a fever and chills at the exact time Zach was out of town and I was solely … Continue reading To the nurse who said she was sorry for our son.
This post was originally published on shecompetes.com when Jackson was only a few months old. I get a lot of new moms who stare in awe when I tell them Jackson's story, recounting every surgery, every procedure, and every unexpected twist the same way they talk about their little ones first smile or coo. There's … Continue reading here’s to you, typical mom.
It has been a while since posting. I should have known - it seems like every time I make the commitment to posting more, something happens to derail that idea. This time around it was a big something, a something I can't say Zach or I were truly prepared for or expecting. In the beginning … Continue reading welcome home.
I have a secret talent. It literally has no use in the real world, but it makes for a great party trick and a wonderful way to amaze (or is it annoy) my husband. I know almost every word to any song I have ever heard. That's not an exaggeration. Somewhere along the line, the … Continue reading How to Survive the Emergency Room: Advice from a Special Needs Mom
This week has been a doozy. I tend to rarely do update posts - this blog has become more of my place to share my thoughts and musings on daily life with Jackson and our journey in the world of special needs parenting. However, sometimes it can be easy to forget that those musings come … Continue reading expectations versus reality.
This post was originally published on she-competes.com, about 100 days after Jackson was born. Stay tuned for the updated version, coming soon! ______________________________________________________________________________________________ One of our favorite nurses asked me a question the other day. 'I've never asked a family this', he said. 'But I've always wondered. Do you worry about Jackson when you're not … Continue reading the same, only different.
I belong to a lot of different mom groups on Facebook, most of which are inhabited by women with typically developing kiddos. Sure, I belong to plenty of 'heart mom', 'trach mom', and special needs groups, but with a second on the way and having questions about the everyday baby things (should poop look like … Continue reading your worst nightmare.
It happened again recently while we were telling Jackson's story - a well meaning stranger said what has been said so many times before. "I have no idea what I would do if I were in your shoes." He had shared that he was the father of two young kids himself and that he just … Continue reading you could and you would.
Yes, yes. I know. It's been quite a while since we posted updates about Jackson. And I'd love to say things have been perfectly easy and quiet around here, but that would be a lie. This is Jackson we're talking about - easy and quiet aren't in our general vocabulary. A lot has happened in … Continue reading first day of school.
When I first started writing on this blog, I used it as a place to write down my feelings, sharing the things that generally went through my head during the mundane hours in the ICU. However, over the last year or so, its evolved into a place to not only share my thoughts, but also … Continue reading new year and new ears.