Life is an adventure. Those words are never more true than when you start out the journey with a few extra challenges. It doesn’t mean you’re behind – it simply means that you get to do things differently, at your own pace, and with your own style.
Welcome to the world of Jackson and Juna, a medically complex little boy and his rescue dog who happens to have too many toes and refuses to sleep on the floor. Jackson was born on September 22, 2016 in Houston, Texas with, what we thought, was a heart condition and nothing more. Little did we know that from that day forward our little man would be surprising us and defy the odds – literally – everyday. Jackson was diagnosed with not one, not two, not even three, but four rare medical and genetic diagnoses, including Tetralogy of Fallot with Pulmonary Atresia, Coffin Siris Syndrome, Meckle’s Diverticulum, and Pierre Robin Sequence. He has had 6 major surgeries, five (updated: just kidding… we’re up to 8) hospital stays, four central lines, three ambulance transfers, visits to two major children’s hospitals, and one really amazing attitude.
Juna is our love bug, our ‘little weirdo’ who came to us as a pup after being loved and cared for by an amazing foster family. She has too many toes on her back feet and a personality like you have never seen. She refuses to sleep on a dog bed – clearly beneath her – and prefers to sleep under the covers in our kingsized bed between my husband and I. We also bought Juna her own oversized chair from Ikea because she’s spoiled and we’re insane.
This life is not one anyone wishes for when planning their family. Navigating the world of medical bills, doctors appointments, and hospital stays isn’t easy. But Jackson and Juna do it with love and laughter and a lot of fun, and we’re just along for the ride. Come join us!