It's never easy to welcome a new family into the club - the world of medically complex kiddos who were born with challenges most will never know. When Jackson was born, we were very quiet with what we shared in regards to his birth announcement, something that I later regretted. My hope is that all … Continue reading welcome to the club.
The road with Jackson so far has been long, but as I was talking with a friend the other day I realized something - I feel like we have come to a point of acceptance in our journey that we didn't have at this time last year. Sure, my husband and I have always been … Continue reading it doesn’t get easier.
It's that time of year again - a time for family and friends and, of course, gifts. I mean, duh, what's the holiday without presents, right? Clearly, I'm just kidding, but there is one common theme among gifts that happens to me every year. It goes a little something like this: Well meaning family member: … Continue reading all I want for christmas is a sweet day planner and a bottle of wine.
Have you ever heard the phrase ‘it’s not all sunshine and roses’? Usually, it comes from someone describing what seems to be an otherwise amazing situation that has some hidden drawbacks you never thought about. Making a movie? It’s not all sunshine and roses – there’s hard work and long hours and directors to deal … Continue reading there are some roses.
'Don't judge a book by its cover' is pretty sound advice to live by. It reminds us that the things we can see and, sometimes, the things we hear about a person are just that - labels that we see or hear that don't define what's on the inside. There is a big push among … Continue reading don’t want your labels? we’ll take ’em.
I hate to admit it, but there are times when we hope for the worst for Jackson. No, I'm not a terrible mom. And, no, I'm not talking about those situations that are life or death or could cause true harm to our little man. But, from time to time, when it comes to hoping … Continue reading hoping for the worst.
Yes, yes. I know. It's been quite a while since we posted updates about Jackson. And I'd love to say things have been perfectly easy and quiet around here, but that would be a lie. This is Jackson we're talking about - easy and quiet aren't in our general vocabulary. A lot has happened in … Continue reading first day of school.
We have been out of the hospital for four days. Four glorious days of sunshine and lake water and relaxation. Four days away from the inside of a hospital and from a process of admission and discharge and readmission that has become somewhat of our norm. They've been a great four days. We spent Monday … Continue reading time away.
It happened again recently while we were telling Jackson's story - a well meaning stranger said what has been said so many times before."I have no idea what I would do if I were in your shoes."He had shared that he was the father of two young kids himself and that he just 'didn't know' … Continue reading repost: you could and you would.
... but maybe not as great in practice. I had all intentions of updating our trip on a daily basis, giving you a recap of all the amazing things that Jackson has been doing on his first trip out of Texas and away from the comfort of his home hospital team. Jokes on me. We … Continue reading well, that was a good idea…